New guidance for researchers on PPI feedback
NIHR CLAHRC East of England has produced guidance for researchers on providing feedback to patient and public involvement (PPI) contributors.
Members of the public, patients, carers, service users, sometimes known as Patient and Public (PPI) contributors, are now expected to be involved in health research due to the many benefits. One common PPI activity is being involved in the design of a research study. PPI contributors make comments on study documents as well as research activities such as sitting on Advisory Committees, data collection, analysis and dissemination.
However, many PPI contributors do not hear if their contributions and comments have been received, if they have been used or if they are beneficial.
This guidance provides some practical tips on the Who, Why, When, What and How researchers could improve their Feedback to PPI contributors.
Find out more about the project and download the guidance below. Page 11 of the guidance has a useful summary for both researchers and PPI contributors. There is also a link to a paper by the same team, published this month in the journal Health Expectations.
Impact of Patient and Public Involvement (PPI): Completing the Feedback Cycle
Guidance for researchers: feedback
Guidance for Researchers PPI Feedback 2018
Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study
Mathie E, Wythe H, Munday D, et al. Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study. Health Expect. 2018;00:1–10.