Patient and public voice

Oral presentations in the theme ‘patient and public voice’ are now available to watch. Leave your comment below to join the discussion.

Health Experiences of Asylum seekers and Refugees (HEAR): findings and recommendations from a survey across Wales

Ashra Khanom

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Exploring how healthcare staff use online patient feedback in practiceː Ethnographic methods used in three NHS Trusts

Lauren Ramsey

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Attendance at cardiac rehabilitation sessions in a group with symptoms of anxiety and/or depression

Gemma Shields

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The baby box scheme in Scotland: a study of public attitudes and social value

Agata Kostrzewa

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Responses to nuisance bleeding and medication concerns when on Dual Antiplatelet Therapy

Christalla Pithara

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Why do patients take part in research and how can recruitment barriers be overcome? An overview of systematic reviews.

Peter Knapp

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Community pharmacy customer attitudes towards mental health support from community pharmacies.

Franziska Stoeckel

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Patient-initiated second medical opinions: characteristics, impact and cost-effectiveness

Liora Shmueli

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Being well and well-being in the context of prostate cancer and creating a new quality of life questionnaire by, and for, persons affected by prostate cancer

David Matheson

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Cyclical variation of patient reported outcomes: a conceptual model

Antoinette Davey

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Exploring the variation of patient-reported outcome scores across different time-points (day, week, month) for patients with multiple conditions

Antoinette Davey

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A longitudinal qualitative study of women’s experiences of care following hypertensive disorders of pregnancy: Findings from the PEONY study

Sergio A. Silverio

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Add your voice to the conversation

Thanks Agata. I found your presentation very interesting. Especially in the tensions that you identified that appear in the public response to the rollout of universal public/social schemes. I would have thought if anything might overcome some of those responses it would be babies - but it would appear from your study - not even then! Thanks Fiona

Thank you for this presentation Peter. Very helpful to consider the barriers & facilitators in light of Covid 19 affecting recruitment and how making data collection virtual might be both a barrier (for those without access) & facilitator (making participation easier) for some.

Thanks, Kath. Yes, this overview (and the included SRs) obviously pre-dates covid-19. I agree about the challenges of virtual or remote research: it will make some research very difficult, and participant engagement may also be a challenge. We found that the research being seen as low burden or convenient was a facilitator of participation, and that could apply to research that is undertaken virtually.